C. difficile Infection (CDI) It’s One Day, One Hour, And One Step At A Time

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Health, defined by the condition of being sound in body, mind, or spirit; especially :  freedom from physical disease or pain.

It can’t be bought, is usually taken for granted, and not easily restored.

 

Being diagnosed with a Clostridium difficile infection (CDI) or better known as C. diff., wasn’t too terrible.  The directions were received from the doctor, medication was ordered and picked up at the pharmacy and recovery was right around the corner.   So we thought.

It’s not an infection  I want to talk about at the bowling alley with my friends, the family doesn’t understand it, not too sure the doc fully understood the road I was about to travel either.

The countless hours began sitting behind the computer searching, reading, freaking out at the copious amounts of negative words describing this bug.

So now I have a pile of information, a sick – sick stomach, bottles of meds, a few bills attached, the jumbo pack of T.P., and an on-line order of products that kill the spores that live in the fecal matter that cause the nightmare.

How in the world did I get this?  Antibiotics?  Out in the community?  While visiting a friend in the healthcare building?  Maybe at the local gym?  Off a contaminated surface somewhere?

The possibilities are many.

It took over three months and three different meds to break the cycle.

Not what they call infected anymore but you tell my G.I. system that.  Still living with the now and then symptoms and upsets.  Never sure when the 100 yard dash is going to take place and always careful about eating out at social functions.  Only four weeks post-C. diff. but I wanted to share a few words with everyone going through this.

Don’t give up and speak up because as the old saying goes the squeaky wheel gets the oil.  Thanks to the C diff Foundation for the information and support.  They understood the pain and suffering when others shunned me and walked away.

Steve C.,   Survivor

 

C. diff. Survivor Shares How Life Is Not the Same After Losses

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It could be Spring, it could be Summer the seasons really don’t matter anymore. 

A loss is a loss in life.  We loose more than we anticipate with any long-term illness and wellness draining diagnosis.  We loose even more deeply and permanently when our loved ones pass away from a multi-diagnosis treated either long-term or short- term  ~ it really doesn’t matter because bottom line — it’s a loss.

 

Clostridium difficile (C. diff.) is gram-positive, anaerobic, and a spore, rod/spindle-shape,  a common bacterium of the human intestine in 2 – 5%. C diff. becomes a serious gastrointestinal infection when individuals have been exposed to antibiotic therapy, and/or have experienced a long-term hospitalization, and/or have had an extended stay in a long-term care facility. However; the risk of acquiring a C diff. infection (CDI) has increased as it is in the community (community acquired) and can be found in outpatient settings. There are significant higher risk factors in patients who are immunosuppressant, ones who have been on antibiotic therapy, and the elderly population.

We know and understand “what” a C. difficile infection is, what we can not understand is what this, and many other healthcare-associated infections,  can do to our lives. 

The acute onset of a C. difficile diagnosis is received, treated, resolved only to have a re-occurrence of the same illness from which one has previously recovered, moving into a the long-term (chronic) debilitating illness.  It’s not the same for everyone as C. diff. is a very individualized diagnosis, as many other infections. 

The landscape of Clostridium difficile has changed over the decades; there are new strains, there are a lot more questions, and increased research is actively taking place worldwide.

The geriatric population used to carry the higher risk of acquiring this infection, however; that has also changed.  It is being diagnosed across the life-span.

C. diff. knows no boundaries, this infection can be acquired by anyone, at any location, at any age.”

 

A loss is a loss in life.  We loose more than we anticipate with any long-term illness and wellness draining diagnosis — one like C. difficile.

Life is not the same after experiencing a loss; The loss of a loved one, the loss of employment, the loss of how the body used to just function without a care in the world.  The Gastrointestinal system endures more than it should especially after encountering three, four, five, six, seven, eight, nine, ten recurrences.

C. diff. claims lives,  rips away dreams and the families are changed forever.

The seasons and the holidays come and go, the healing takes time both emotionally and physically.  The losses are many from an infection — one that we can all try to prevent

 

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PREVENTION:

Hand washing is so important, before and after meals, after using the restrooms, before cooking and touching food, after handling pets, and often.  It is the first defense of stopping the spread of germs and increasing personal safety.

Special contact precautions for prevention of the spread of infection can vary from strict isolation of the patient and such measures as wearing gloves, and a gown and healthcare professionals must use care when handling infectious material and soiled linens.

No matter what the diagnosis or status of the patient, hand washing for everyone – before and after each contact is imperative.

 

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In the care of patients for whom special precautions have not been assigned, gloves are indicated whenever there is direct contact with body fluids. Gowns are worn over the clothing whenever there is a positive stool test for C. diff. infection, and the possibility that one’s clothing/uniform could become soiled with infectious material.

When a definitive diagnosis of an infectious disease has been made and special precautions are ordered, it is imperative that everyone having contact with the patient adhere to the rules. Family members and visitors will need instruction in the proper techniques and the reason they are necessary.

 

 

PatientwashinghandswhelpOffering the patient a basin of water with soap, and a dry towel,  to wash their hands will also help. The patient is not exempt and this important infection prevention method will reduce the spread of germs and also reduce the reintroduction of the germs to your loved one — the patient.

 

Pill-bottlesAnd limiting the use of Antibiotics — discussing the diagnosis with the healthcare provider and knowing when they will be helpful treating  symptoms will also curb antibiotic resistance and prevent acquiring  C. difficile.

To listen to a live broadcast with Dr. Hicks and Dr. Srinivasan from the CDC and their discussion on  “How to use antibiotics wisely and how everyone can help in the fight against antibiotic-resistance,” on “C. diff. Spores and More” Cdiff Radio click on the following link

http://cdifffoundation.org/2016/02/10/using-antibiotics-wisely-how-everyone-can-help-in-the-fight-against-antibiotic-resistance-worldwide/

 

For more information on Infection Prevention, Antibiotic Resistance, Advocating for a loved one,             C. difficile information on “home care” and more ~ please visit the C Diff Foundation website     www.cdifffoundation.org

 

Life will not be the same for us and we can all make a difference from today forward in helping others save lives and prevent  C. difficile infections worldwide.

 

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C. diff. Global Tele-Support Program Welcomes C. diff. Survivors, Patients, Families, Clinicians and All

CdiffGlobalSupportFThe  C. diff. Global Community Tele-Support  program was developed for patients diagnosed with this gastrointestinal infection, for their families, clinicians, C. diff. survivors continuing their recovery from a prolonged illness and any individual seeking support and information are welcome to register.

 

 

C. difficile (C. diff.) infections caused almost half a million infections among patients in the United States in a single year, according to a 2015 study by the Centers for Disease Control and Prevention (CDC). In  addition, an estimated 15,000 deaths are directly attributable to C. difficile infections, making them a substantial cause of infectious disease death in the United States.

These tele-support sessions are focused on:
Nutrition, Mental Health, The Who – What – Where of C. difficile infections,
Fecal Microbiota Transplant (FMT) general information, and more.

The support sessions are lead by fellow-C. diff. Survivors and Healthcare Professionals
with first hand experience and knowledge of topics being discussed.

This program is beneficial to families, patients, and healthcare professionals alike.

Please feel free to offer this program information to others to listen in or participate.
Share the page with friends/family members afflicted with a C. difficile infections
and many other long-term illnesses.

This program is free of charge and available Nationwide and is accessible from 57 Countries.

*To view the complete Country/City Listing please visit the C Diff Foundation Website http://www.cdifffoundation.org  and it can be located under the Top Tab Heading “C diff Support.”

 

Support is never singled out to one diagnosis and is only a phone call away

For the month of  MARCH  the following  Support Sessions are available:

Monday, March 7st:  Host – Angela Martin, a  retired healthcare professional and
fellow-C. diff. Survivor.  Topic:  The session will provide general  information and support related to Fecal Microbiota Transplantation (FMT) as an alternative and promising treatment (not yet FDA approved with clinical data pending), for C. difficile infections (CDI).  Discussions will be focused on information for pre- and post-FMT and failed FMT’s for patients, families, and clinicians worldwide.   Join Angela’s support session on the first Tuesday each month
via: Teleconference at 1:00 p.m. Central Time

Wednesday, March 9th: Host – Lisa Hurka-Covington, a fellow-C. diff. Survivor.
Topic: The session will provide mutual support related to depression and anxiety created by long term illnesses.  Join Lisa to discuss the importance of supporting mental health with physical healthcare on the second  Wednesday each month via: Teleconference at 2:30 p.m.
Eastern Time

Friday, March 11h: Host – Scott Battles, a fellow-C. diff. Survivor.   Topic: The session will provide answers to questions with the introduction to a C. diff. infection.  Join Scott with fellow patients, families, and C. diff.
survivors on the second  Friday each month  via: Teleconference at 7:00 p.m.
Central Time

Colorado Physical Venue Support Group:  Colorado C. diff. Support Group,  Hosted by  a fellow-C.diff. Survivor, Roy Poole,  on the Third Tuesday of each month.  The session will provide discussions about C. diff. introduction, C. diff. Research and development in progress, and hope.  Join Roy and fellow patients, families, and C. diff. survivors  on March 15th at  the Arvada Covenant Church,  5555 Ward Rd , Arvada, CO from 5:30 p.m. – 7:00 p.m
Mountain Time.

Thursday, March 17th: : Host – Karen Factor, MS, RD   Topic: The session  will provide discussions focused on  Nutrition during a C. diff. infection (CDI) and how to manage nutrition and hydration.  Join Karen  the third Thursday each month  via: Teleconference at 7:00 p.m.
Eastern Time

Monday, March 28th: Hosts – Dr’s Caterina Oneto, MD & Dr. Paul Feuerstadt, MD
Topic:  Doctors Oneto and Feuerstadt will discuss C. difficile Infections; The What, Where and How There will be opportunities to ask a  brief question to the physicians.  We appreciate Dr.’s Oneto and Feuerstadt for donating their time to discuss C. difficile Infections and to provide information regarding prevention, treatments available, and environmental safety products available.   Join their support session via: Teleconference at 6:00 p.m
Eastern Time

NOTE:  The Physicians will not prescribe, diagnose, or provide medical assessment answers to any individuals participating in their support session.  Please contact the Physician providing care for a C. diff. Infection or other diagnosis that are being treated.    Thank you.

To register for any of the above sessions please provide us with the following information and  you will receive an e-mail in return with the support session Teleconferencing number and Conference ID number.

Or Telephone the office to register   U.S. Hot-Line:  1-844-367-2343,
International: 1-919-201-1512

Thank you for providing your Support Session Choice  to participate in a community support session.

Outstanding Article — Georgia Writer’s Battle With Deadly Superbug — Clostridium difficile

http://specials.myajc.com/fixing-to-die/

We do not usually share articles written focused on C. diffiicle infections, however; this piece is outstanding.

It tells a story of a man – acquiring C. difficile – a fight for his life.

How many of you can relate to this scenario?

YES — we know YOU CAN!

There will be parts of this article that will pull at your own heart strings, your memories will swing back through the closed door of this painful time in your life, and this man on the mend will one day stand shoulder to shoulder with the many of us — a C. diff. Survivor.

We send out our sincere get-well wishes to this patient recovering from all he has endured (C. difficile, Sepsis + more) and let us all keep him and all of us in our thoughts with good wishes and support.

 

C diff Survivors Alliance Network